Here's the latest on this interesting pregnancy. :) We had another appointment this evening. The past couple of weeks have been pretty uncomfortable. I honestly feel like a walking time bomb. I explained to the doctor that I've had some fairly painful episodes of "pressure." She explained that I'm going to feel very different than my other pregnancies because the pressure of the placenta is constant and more intense and the baby is transverse and "free floating" and won't get settled down like the others did.
She was totally understanding of my unsettled feelings about living so far from the hospital and not knowing what would happen day to day. So we had a lengthy discussion about the different possibilities and what would happen in each scenario. So I'll try to explain the management plan for the remainder of the pregnancy. If you read this and are more confused than you were before, I apologize. There are a ton of variables and possiblities, but I get so many questions about what's going on that I thought I should try to explain as best I can.
I am currently 32 weeks along. We've had no bleeding episodes thus far. Statistically, it's fairly unlikely that I won't have one in the next few weeks, but it's a good sign that there has not been one yet. If I have a bleed in the next two weeks, they will do as we had planned before- watch and see, give me steriods to speed his lung development and then do the amniocentesis to check for lung development and take him out as soon as his lungs are ready.
However, most previa bleeds are recurrent. So if I have one, it's likely there will be more- probably in a short amount of time. If, in the next two weeks, I have more than one bleed (say, three), they will deliver him at 34 weeks, because it isn't worth the risk to wait any longer than that. In her words "we get less patient with each recurrent bleed." If there is no bleed in the next two weeks, they will do the ultrasound as planned.
Ok, so let's say that we make it two more weeks without a bleed and I'm still pregnant at 34 weeks. :) They'll check Korbin's size, fluid levels, placental blood flow, etc during the ultrasound. If everything looks good, they'll schedule an MRI at 36 weeks.
If we get to 36 weeks and I'm still pregnant, we'll do the MRI to check for accreta. Accreta is when the placenta grows too deeply into the uterus. We're already concerned about this because during my last ultrasound they could not find a definative line between the placenta and the uterus, but there's no way to really diagnose accreta with an ultrasound. The MRI should give us a better idea.
If the MRI shows NO sign of accreta, then we will reevaluate everything and may attempt to make it to 39 weeks (September 7th). If there is any sign of accreta, they will deliver him the next week at 37 weeks. If we deliver at 37 weeks, they'll prepare me for blood transfusion during delivery and do a vertical skin incision in case they need to do an emergency hysterectomy. She assured me that the hysterectomy would be last resort, but obviously they're not going to let me die to save my uterus. (reassuring, huh. haha)
So we may have a baby in 2 weeks, in 5 weeks, or in 7 weeks...actually, technically, we could have a baby any day if I had a significant enough bleed. No more than 7 weeks left in this crazy pregnancy, though. I will feel so much better when he's safe and on the outside. I don't want him to come out a day too soon, but I don't want to play Russian roulette with this thing either. So we continue on the "wait and see" game for now.
She said that she knows it's laughable to say "take it easy" in my situation, but did ask that I "restrict my mobility" within reason. That doesn't mean I can't get out, but nothing strenuous and trying to do only the necessary when it comes to real exertion. So hopefully that will keep any bleeding episodes away for the rest of the pregnancy.
I'm praying that I would be able to see past my fears that the entire situation is not left to chance, but is in hands of a perfect God. I'll keep everyone updated over the next few weeks.
Wednesday, July 20, 2011
Friday, July 15, 2011
Update on Kaytie
I know it's been forever since I wrote a regular old blog post. Things around here have kept me quite busy these past few months, and my family is, of course, my priority...so alas, my blogging has taken a break for awhile. Hopefully I'll be back to writing soon. I am, however getting in quite a bit of reading and can't wait to catch everyone up on great reads! For now though, here's an update for those of you who have been following what's going on with our sweet little girl.
Kaytie developed a really nasty cough about 4 months ago. It coincided with allergy season and Kai had terrible allergies, so we thought it was probably just that and treated it as such. However, she never got any better. For the past 4 months she's had coughing fits nearly every night that would continue until she threw up. It has been absolutely exhausting for her and for mommy, who would have to try to keep her calm and change sheets multiple times, and of course is quite pregnant and exhausted anyway.
I took her to the doctor at the end of May/beginning of June. They did a chest x-ray which came back fine and told us it could be one of three things- allergies, asthma or acid reflux. They decided treatment of reflux was the easiest so they would try to rule that out first. They also informed us that it could take up to a month before we would know if it had worked. She got worse. The coughing fits started to come several times a day and the wheezing started. The poor little thing just struggled all the time.
On our way home from Florida last weekend she had a coughing fit that lasted from the time she woke up in Chattanooga until Murfreesboro, KY. We tried everything we could think of to make it stop from honey to Vicks (which only succeeded in making her smell like a nursing home and making mommy slightly queezy). So Monday morning we were back to the doctor. He put her on albuterol treatments through a nebulizer and scheduled an appointment with a specialist.
Much to our relief, the albuterol treatements did seem to help, but they had to be given to her at least three times a day and as soon as one would wear off, the coughing and wheezing would ensue again, so this was obviously not going to be a great long-term option.
This morning we saw the specialist. They did an allergy skin test (poor sweet darling) and found that she has no major allergies. (aside from the sunscreen one, but that's a whole different story) They did do an x-ray of her face to rule out chronic sinusitus, but that doctor said he was fairly certain in was not that, he just wanted to be thorough.
So she has been "tentatively" diagnosed with asthma. I say "tentatively" because apparently they cannot give a firm asthma diagnosis on a child that small. She'll be reevaluated periodically and when she's a few years older she'll be given the lung function test that can tell them for sure. For now though, she will be treated as though it is asthma.
She'll get two doses of a preventative medicine through her nebulizer per day to start with. We're hoping that we'll be able to ween her down to one and eventually put her on a pill instead of the breathing treatment, but that will probably be a ways down the road. She'll also use the albuterol treatments as a "rescue inhaler" type of treatment when she has her coughing/wheezing fits. The doctor is hoping that once we get this under control we won't have to do the "rescue" treatments more than twice a week.
It's a bit overwhelming to think of having to do multiple breathing treatments a day with her for a long period of time, since she doesn't sit still very well on her own yet, and we're about to have our hands quite full here in a few weeks when the baby gets here. It will also mean that we have to keep a closer eye on her during cold/flu season as her condition can make these illnesses more serious. And of course, it's not exactly convenient to tote around a nebulizer machine whereever you go (along with four small children and their things) in order to make sure she can get a rescue treatment if she needs one. But I am so grateful that we may be getting my sweet girl some relief. She's struggled with this for so long. Now, in the next couple of weeks we may get that coveted full night's sleep we've been so desperately needing (just in time for it to be interrupted by night time feedings. haha)
Thank you all for your prayers for Kaytie during this time. She handled the tests like a champ. We got her a "bubbles the fish" mask for her nebulizer so hopefully it won't be as difficult to give them to her. We shall see. Any bets on whether my kids fight over "bubbles the fish"?
Kaytie developed a really nasty cough about 4 months ago. It coincided with allergy season and Kai had terrible allergies, so we thought it was probably just that and treated it as such. However, she never got any better. For the past 4 months she's had coughing fits nearly every night that would continue until she threw up. It has been absolutely exhausting for her and for mommy, who would have to try to keep her calm and change sheets multiple times, and of course is quite pregnant and exhausted anyway.
I took her to the doctor at the end of May/beginning of June. They did a chest x-ray which came back fine and told us it could be one of three things- allergies, asthma or acid reflux. They decided treatment of reflux was the easiest so they would try to rule that out first. They also informed us that it could take up to a month before we would know if it had worked. She got worse. The coughing fits started to come several times a day and the wheezing started. The poor little thing just struggled all the time.
On our way home from Florida last weekend she had a coughing fit that lasted from the time she woke up in Chattanooga until Murfreesboro, KY. We tried everything we could think of to make it stop from honey to Vicks (which only succeeded in making her smell like a nursing home and making mommy slightly queezy). So Monday morning we were back to the doctor. He put her on albuterol treatments through a nebulizer and scheduled an appointment with a specialist.
Much to our relief, the albuterol treatements did seem to help, but they had to be given to her at least three times a day and as soon as one would wear off, the coughing and wheezing would ensue again, so this was obviously not going to be a great long-term option.
This morning we saw the specialist. They did an allergy skin test (poor sweet darling) and found that she has no major allergies. (aside from the sunscreen one, but that's a whole different story) They did do an x-ray of her face to rule out chronic sinusitus, but that doctor said he was fairly certain in was not that, he just wanted to be thorough.
So she has been "tentatively" diagnosed with asthma. I say "tentatively" because apparently they cannot give a firm asthma diagnosis on a child that small. She'll be reevaluated periodically and when she's a few years older she'll be given the lung function test that can tell them for sure. For now though, she will be treated as though it is asthma.
She'll get two doses of a preventative medicine through her nebulizer per day to start with. We're hoping that we'll be able to ween her down to one and eventually put her on a pill instead of the breathing treatment, but that will probably be a ways down the road. She'll also use the albuterol treatments as a "rescue inhaler" type of treatment when she has her coughing/wheezing fits. The doctor is hoping that once we get this under control we won't have to do the "rescue" treatments more than twice a week.
It's a bit overwhelming to think of having to do multiple breathing treatments a day with her for a long period of time, since she doesn't sit still very well on her own yet, and we're about to have our hands quite full here in a few weeks when the baby gets here. It will also mean that we have to keep a closer eye on her during cold/flu season as her condition can make these illnesses more serious. And of course, it's not exactly convenient to tote around a nebulizer machine whereever you go (along with four small children and their things) in order to make sure she can get a rescue treatment if she needs one. But I am so grateful that we may be getting my sweet girl some relief. She's struggled with this for so long. Now, in the next couple of weeks we may get that coveted full night's sleep we've been so desperately needing (just in time for it to be interrupted by night time feedings. haha)
Thank you all for your prayers for Kaytie during this time. She handled the tests like a champ. We got her a "bubbles the fish" mask for her nebulizer so hopefully it won't be as difficult to give them to her. We shall see. Any bets on whether my kids fight over "bubbles the fish"?
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